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• Video - Making Ink Paintings, Theresa Byrnes 2006

  Created: Thursday, 03 February 2011 22:59

  Theresa Byrnes in her studio, talking about the making of work and documenting its creation. http://www.youtube.com/watch?v=ijGghlODM4A See alsohttp://www.youtube.com/watch?v=hyuFQwUn8CEhttp://www.youtube.com/watch?v=E4iVkpupDp4http://www.youtube.com/wa...

• A Cocktail of antioxidants as a new therapy against a neurodegenerative disease

  Created: Thursday, 03 February 2011 22:29

  News kindly supplied by Goran Ilic Date: 02/02/2011 (…) Aurora Pujol, said that if the drug works in humans, it could open the door to evaluate other antioxidants therapeutic strategies against other axonopathies in wich oxidative stress may have an i...

• Video - Dr. Lufino's talk for BabelFAmily about gene therapy for Friedreich's ataxia

  Created: Tuesday, 01 February 2011 21:33

    Cervia (Italy), October 2, 2010 Video interview kindly supplied in lay terms for BabelFAmily by Dr. Lufino during the euro-Ataxia meeting. Transcription by Kristin Kamm and Claudia Guiraldes / Subtitles by Hasan Çiçek Click CC on the player t...

• INTERNATIONAL LITERARY PROJECT AGAINST FRIEDREICH’S ATAXIA - INVITATION TO WRITERS, ASSOCIATIONS AND FA PATIENTS

  Created: Sunday, 30 January 2011 15:49

  Dear friends:We would like to introduce you to a phenomenal, albeit ambitious initiative presented by María Blasco, a 38 year old Spanish writer who has been affected by FA since she was 12. She has recently published her second book to great success.&nb...

• Patent application publication - Methods and compositions for mitochondrial replacement therapy

  Created: Thursday, 27 January 2011 22:19

  Kindly supplied by Hasan Çiçek Full text link: http://www.freepatentsonline.com/20110008310.pdf...

• Open-access article - Mammalian Frataxin: An Essential Function for Cellular Viability through an Interaction with a Preformed ISCU/NFS1/ISD11 Iron-Sulfur Assembly Complex

  Created: Thursday, 27 January 2011 19:15

  Kindly supplied by Juan Carlos Baiges through Internaf and FAPG Full text link: http://www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0016199...

• Reviews - The Dandelion Diary: the tricky art of walking, by Marguerite Black

  Created: Sunday, 16 January 2011 21:29

    Nov 23, 2007 THIS exquisitely written book is like a stroll through an old Eastern Cape garden, full of sounds and smells, colours and textures, described with the sweet and beautiful detail of a miniature landscape. “Loquats half-maimed, eat...

• Preventing the ubiquitin/proteasome-dependent degradation of frataxin, the protein defective in Friedreich’s Ataxia

  Created: Sunday, 16 January 2011 19:36

  Abstract kindly supplied by Goran Ilic Alessandra Rufini*, Silvia Fortuni*, Gaetano Arcuri, Ivano Condo’, Dario Serio, Ottaviano Incani, Florence Malisan, Natascia Ventura and Roberto Testi$+ Author AffiliationsLaboratory of Signal Transduction, Depart...

• Euro-ATAXIA Conference and AGM 2011 - draft programme

  Created: Sunday, 16 January 2011 13:52

  Information kindly supplied by Julie Greenfield, Ataxia UK. The 2011 euro-ATAXIA annual meeting and AGM will take place in Strasbourg, France from 6 – 8 May 2011. Saturday 7 May is for euro-ATAXIA members only. On Sunday 8 May there will be a range of...

• In vitro evaluation of idebenone-loaded solid lipid nanoparticles for drug delivery to the brain

  Created: Thursday, 13 January 2011 21:51

  Abstract kindly supplied by Goran Ilic Lucia Montenegro1, Agata Campisi2, Maria Grazia Sarpietro3, Claudia Carbone1, Rosaria Acquaviva2, Giuseppina Raciti2, Giovanni Puglisi1 1Department of Pharmaceutical Sciences, University of Catania, Catania, Italy2D...

• DNA Introduced Directly Into Cell Nucleus Using Protein Nanodisks

  Created: Wednesday, 12 January 2011 23:17

  ScienceDaily (Jan. 11, 2011) — Researchers have discovered a novel gene therapy method using particles measuring only a few nanometers which encapsulate genetic material and introduce themselves directly into the cell nucleus. The nanodisks, as research...

• Forum - Responses to “Role for HDAC3 in Friedreich’s Ataxia”

  Created: Sunday, 09 January 2011 20:33

    See http://drugdiscoveryopinion.com/2009/10/role-for-hdac3-in-friedreichs-ataxia/comment-page-1/#comments...

• From Alessia Mainardi's blog, a young writer suffering from Friedreich's Ataxia.

  Created: Friday, 31 December 2010 15:44

   Translation for BabelFAmily: Katherine Kamal    (...) Don't think for a minute that I'm just a 'little girl' who likes to 'dress up like a cartoon character'. I am a writer by profession and in every day life I am a disabled person suffe...

• Abstract: Generation of Induced Pluripotent Stem Cell Lines from Friedreich Ataxia Patients.

  Created: Sunday, 26 December 2010 17:55

  The link to this abstract has been kindly supplied by Juan Carlos Baiges through Internaf and FAPG Stem Cell Rev. 2010 Dec 22. [Epub ahead of print]Generation of Induced Pluripotent Stem Cell Lines from Friedreich Ataxia Patients.Liu J, Verma PJ, Evans-G...

• BabelFAmily's interview with Ron Bartek (FARA) - part 7 of 7

  Created: Sunday, 26 December 2010 14:18

    BabelFAmily's interview with Ron Bartek on the latest progress in Friedreich's ataxia research - part 7 of 7. Cervia, Italy, October 2, 2010 Transcription by Nathalie Kourimsky  / Subtitles by Hasan Çiçek Click CC on the player to select...

• BabelFAmily International Initiative to Defeat FA

  Created: Sunday, 19 December 2010 19:07

  Calendar Sale to Help Defeat Friedreich's Ataxia  FOR IMMEDIATE RELEASE (Free-Press-Release.com) December 17, 2010 -- BabelFAmily, an international non-profit organization committed to supporting scientific research on Friedreich’s Ataxia (FA), h...

• Ron Bartek’s second update on Repligen’s HDACI sent through Internaf and FAPG

  Created: Tuesday, 14 December 2010 23:07

  Note: the following message is published by BabelFAmily with Ron Bartek’s permission ----- Original Message ----- From: "Ron Bartek" To: "fapg" ; internafSent: Saturday, December 11, 2010 8:40 PMSubject: Re: [FAPG] HDAC Inhibitors -Repligen Dear frie...

• FARA News - New Newsletter Available

  Created: Saturday, 11 December 2010 01:28

  December 7, 2010 The Advocate - Winter 2010-2011...

• Please VOTE DAILY ---> 3 clicks ---> FARA (Friedreich's Ataxia).

  Created: Friday, 10 December 2010 19:38

  Please go to the Bonefish Grill website and vote for FARA (Friedreich’s Ataxia Research Alliance). Click on the link below. You can vote daily. http://contact.bonefishgrill.com/GGW2010_Charities.aspx...

• Robotic Trousers ReWalk Prevents Health Problems

  Created: Wednesday, 08 December 2010 17:48

    By: Rob Adams, Staff WriterPublished: Dec 7, 2010 Robotic Trousers Robotic trousers ReWalk prevents health problems. Israeli entrepreneur Amit Goffer has invented robotic trousers named ReWalk. This new can prevent health complications such as d...