High school art students from Margarita Salas Art Institute (Madrid, Spain) contribute their works in hopes of raising funds for medical research into ataxias.

 

 

 

 

 

 

Interview conducted by : MariLuz González Casas

 

 

Majadahonda (Madrid), April 14, 2008

 

 

Dear friends, I want to introduce to you an exceptional group of young people.  They are high school students from the Margarita Salas Art Institute, enthusiastic young people with marvelous human qualities as well as artistic talent.  A few days ago, I had my first meeting with the drawing instructors of the school, to whom I presented the concept of putting together an art exposition to raise funds which would go to research into ataxias.  These teachers passed the word on to their students, and they got right to work.  Today I had a brief interview with the students, which I must say was a real pleasure for me.  They told me about their paintings, the techniques they used, and their plans for the future.

 

Clara, for example, who posed beside her own work, wants to study fine arts.  She explained to me that normally at this phase in their education there are no “favorite painters”.  Students are supposed to learn from them all in order to forge their own style.  Clara is fond of both painting and music.

 

 

Natanael has always known that his passion was painting.  In spite of being young, he already has a very personal style: the young people in his painting appear in the lenses of his sunglasses, adopting distant looks accentuated by the opaque sunglasses, in spite of which they give off a warmth and a humanity like those of the artist.

 

 

 

Gael wants to devote himself to advertising.  It’s an exciting field with a great future.

 

For Hugo, however, painting is just his hobby.  His real passion is languages, and he’d like to be a translator.

 

Daniel wants to be a fashion designer.  Here we see him with one of his paintings.

 

 

 

 

Our friends in the art classroom

 

 

Pointing out different aspects of the paintings

 

 

Smiles, both real and on canvas

 

 

 

Cabaret

 

 

Nude

 

 

These are just a few names.  They all have their hopes and their fears.  May the future bring them much satisfaction—they deserve it, these students! 

Many thanks to the entire school, and especially to the Art Department--Manuela, Juan, Pepe, Manuel, Fatima, Arturo, and Pablo--who with your daily work continue to bring out the best in your students.

 

For our dear young artists, words are inadequate to express our deep gratitude

 

These students will display their art on April 29 at 4 p.m. on the occasion of Encuentro Ataxias 2008, which will be held at the Central Office of Caja Navarra (the Bank of Navarra) in Madrid,

located at 3 Juan Bravo Street, at the corner of Claudio Coello Street

 

 

 

 

 

http://www.educa.madrid.org/web/ies.margaritasalas.majadahonda/imagenes/logoc.gif

I.E.S. MARGARITA SALAS

MAJADAHONDA (MADRID)

Tfo:                91 634 05 99        

 

 

http://www.educa.madrid.org/web/ies.margaritasalas.majadahonda/

 

ies.margaritasalas.majadahonda@...


The legacy of Marie Schlau: literature to help cure Friedreich's Ataxia

If you feel like reading an unputdownable novel while collaborating with a just and solidary cause, "The Legacy of Marie Schlau" is your book! 100% of all funds raised will be dedicated to medical research to find a cure for Friedreich's Ataxia, a neurodegenerative disease that affects mostly young people, shortening their life expectancy and confining them to a wheelchair.

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Paperback and Kindle versions for "The legacy of Marie Schlau" available for sale at Amazon now!

https://www.amazon.com/Legacy-Marie-Schlau-collective-Friedreichs-ebook/dp/B01N28AFWZ

 

Research projects currently being financed by BabelFAmily

Currently, BabelFAmily is financing two promising research projects aimed at finding a cure for Friedreich's Ataxia. Whenever you make a donation to us or purchase a copy of "The legacy of Marie Schlau", this is where all funds raised will be devoted to:

1) Gene Therapy for Friedreich's Ataxia research project:

https://www.irbbarcelona.org/en/news/international-patient-advocates-partner-to-fund-spanish-gene-therapy-project-to-treat

The project is the result of an initiative of Spanish people affected by this rare disease who are grouped in GENEFA in collaboration with the Spanish Federation of Ataxias and the BabelFAmily. The Friedreich’s Ataxia Research Alliance (FARA), one of the main patients’ associations in the United States now joins the endeavour.

2) Frataxin delivery research project:

https://www.irbbarcelona.org/en/news/new-research-front-to-tackle-friedreichs-ataxia
The associations of patients and families Babel Family and the Asociación Granadina de la Ataxia de Friedreich (ASOGAF) channel 80,000 euros of their donations (50% from each organisation) into a new 18-month project at the Institute for Research in Biomedicine (IRB Barcelona). The project specifically aims to complete a step necessary in order to move towards a future frataxin replacement therapy for the brain, where the reduction of this protein causes the most damage in patients with Friedreich’s Ataxia.

The study is headed by Ernest Giralt, head of the Peptides and Proteins Lab, who has many years of experience and is a recognised expert in peptide chemistry and new systems of through which to delivery drugs to the brain, such as peptide shuttles—molecules that have the capacity to carry the drug across the barrier that surrounds and protects the brain. Since the lab started its relation with these patients’ associations in 2013*, it has been developing another two projects into Friedrich’s Ataxia.

 

 

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