www.theratogs.com

Videos: http://www.theratogs.com/Media/Press/KGO_Autism/index.html

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TheraTogs Inventor Interviewed by Fox News

Beverly Cusick, PT, MS, COF -- company co-founder, President, and the inventor of TheraTogs -- was interviewed on the "Dr. John" medical news segment of Denver Fox News in August 2007. Dr. John Torres, MD interviewed Beverly along with Lori & Easton Parfitt. Easton is a Denver client whom Beverly has seen several times, and who has benefited significantly from wearing TheraTogs; Lori is Easton's mother, and a vocal advocate of TheraTogs.

Watch the video:

http://www.myfoxcolorado.com/myfox/MyFox/pages/sidebar_video.jsp?contentId=4120203&version=1&locale=EN-US

Instructions for use (in English):

http://www.gositalia.it/docs/KIT%20PER%20ATASSIA%20GEN.%2006.pdf

Partial transcription:

Intended Use -- TheraTogs AtaxiTog Kit

The TheraTogs™ AtaxiTog Kit is an orthotic undergarment system, designed to function as “live-in” therapy that is worn under clothing, either directly on the skin or over a close-fitting knitted shirt.

The AtaxiTog design is founded in the sciences pertaining to role of the sensori-motor system - particularly the role of proprioception - in maintaining balance and movement precision, and the enhancing effects of adding deep joint compression. (Adler 35 al 2003, Voss 1991)

The primary population for which this specific kit was designed and assembled includes children and adults with cerebellar ataxia – static or progressive - and balance and hand use problems related to proprioceptive deficit and hip abductor weakness. This group includes those with Multiple Sclerosis in the early stages of diminishing standing and walking balance.

A second population that can be expected to benefit from the deep pressure provided by the AtaxiTog is children with attention deficits associated with autism, attention deficit disorder (ADD), and pervasive developmental disability (PDD). Studies suggest that wearing a weighted vest produces notable gains in attention span and on-task behaviors in these children. (Olson et al 2004, VandenBerrg 2001, Fertel-Daly et al 2001).

The AtaxiTog Kit can be expected to support the objectives of reducing staggering gait or excessive body segment displacements in standing, or of raising the level of attention to tasks, if those gains are attainable with unforced handling, including manual joint compression through the torso.

Applicable Diagnosis or Clinical Problem

The TheraTogs AtaxiTog Kit can be an effective modality for the management of:

􀂃 Cerebellar ataxia – static or progressive

􀂃 Balance loss with Multiple Sclerosis

􀂃 Attention Deficit Disorder (ADD), responsive to deep compression

􀂃 Inattention due to Autism, responsive to deep compression

􀂃 Hypotonia, relative to Pervasive Developmental Disorder (PDD)

What Can the AtaxiTog Do?

The TheraTogs AtaxiTog Kit features a new design of the standard TheraTogs TankTop to include long ‘anchor flaps’ that connect directly to the thigh cuffs on the Hipster.

For the client with ataxia, the new anchor flap design offers key advantages over the Full Body Kit:

            ô€‚ƒ Adds postural and hip stability without strapping.

            ô€‚ƒ Simplifies the TheraTogs donning and doffing process for patients who only need to address issues of joint stability, balance, and movement organization caused by ataxia.

The Hipster contributes the following features to the system:

            ô€‚ƒ Increased vertical stretch resistance for added hip stability

            ô€‚ƒ Entire surface is Velcro-sensitive for attaching the AtaxiTog anchor flaps and other (optional) strapping if needed.

            ô€‚ƒ Unique trim lines permit toileting without doffing the garment.

How is the AtaxiTog Used?

The objectives of this TheraTogs configuration are as follows:

            ô€‚ƒ As an improvement over a weighted vest, the elasticized, extended flaps on the AtaxiTog Top apply vertical compression between the shoulders and thighs, through the weight-bearing joints of the spine and hips, enhancing proprioceptive sensation.

            ô€‚ƒ To dynamically constrain the segments of the torso and hips against excessive deviations from midline in standing and walking activities.

            ô€‚ƒ To facilitate quicker balancing responses by enhancing tactile and proprioceptive awareness of displacing body segments in the presence of weight shifts

            ô€‚ƒ To mechanically assist the hip abductor muscles in stabilizing the body

            ô€‚ƒ To challenge the hip abductors to activate more rigorously in response to weight shifts by reducing excessive hip lateral rotation due to laxity or muscle imbalance.

The attending clinician:

            ô€‚ƒ Facilitates the desired improvements manually, using compression and manual stabilization techniques (NDT)

            ô€‚ƒ Prescribes the wear schedule.

Contact:

TheraTogs Inc. – 305 Society Drive, Suite C-3 – Telluride, CO 81435-8914

               (888) 634-0495         .

               (970) 634-0495        

               (970) 728-7028         fax

www.theratogs.com

info@... (V1-06)


The legacy of Marie Schlau: literature to help cure Friedreich's Ataxia

If you feel like reading an unputdownable novel while collaborating with a just and solidary cause, "The Legacy of Marie Schlau" is your book! 100% of all funds raised will be dedicated to medical research to find a cure for Friedreich's Ataxia, a neurodegenerative disease that affects mostly young people, shortening their life expectancy and confining them to a wheelchair.

The life of Marie Schlau, a German Jewish girl born in 1833 hides great unsolved mysteries: accidents, disappearances, enigmas, unknown diagnoses, disturbing murders, love, tenderness, greed, lies, death ... alternatively a different story unfolds every time and takes us closer to the present. Thus, there are two parallel stories unravelling, each in a different age and place, which surprisingly converge in a revelatory chapter.

Paperback and Kindle versions for "The legacy of Marie Schlau" available for sale at Amazon now!

https://www.amazon.com/Legacy-Marie-Schlau-collective-Friedreichs-ebook/dp/B01N28AFWZ

 

Research projects currently being financed by BabelFAmily

Currently, BabelFAmily is financing two promising research projects aimed at finding a cure for Friedreich's Ataxia. Whenever you make a donation to us or purchase a copy of "The legacy of Marie Schlau", this is where all funds raised will be devoted to:

1) Gene Therapy for Friedreich's Ataxia research project:

https://www.irbbarcelona.org/en/news/international-patient-advocates-partner-to-fund-spanish-gene-therapy-project-to-treat

The project is the result of an initiative of Spanish people affected by this rare disease who are grouped in GENEFA in collaboration with the Spanish Federation of Ataxias and the BabelFAmily. The Friedreich’s Ataxia Research Alliance (FARA), one of the main patients’ associations in the United States now joins the endeavour.

2) Frataxin delivery research project:

https://www.irbbarcelona.org/en/news/new-research-front-to-tackle-friedreichs-ataxia
The associations of patients and families Babel Family and the Asociación Granadina de la Ataxia de Friedreich (ASOGAF) channel 80,000 euros of their donations (50% from each organisation) into a new 18-month project at the Institute for Research in Biomedicine (IRB Barcelona). The project specifically aims to complete a step necessary in order to move towards a future frataxin replacement therapy for the brain, where the reduction of this protein causes the most damage in patients with Friedreich’s Ataxia.

The study is headed by Ernest Giralt, head of the Peptides and Proteins Lab, who has many years of experience and is a recognised expert in peptide chemistry and new systems of through which to delivery drugs to the brain, such as peptide shuttles—molecules that have the capacity to carry the drug across the barrier that surrounds and protects the brain. Since the lab started its relation with these patients’ associations in 2013*, it has been developing another two projects into Friedrich’s Ataxia.

 

 

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