The Organizing Committee of the III International Symposium on Hereditary Ataxias has the pleasure to advertise the celebration of this prestigious scientific event during October 1-3, 2008 in the Convention Hall of Atlántico Hotel, located in the beautiful beaches of Guardalavaca, Holguin , Cuba.

The Symposium will be a major scientific neurosciences meeting bringing together over a hundred participants from various regions of the world and our country.
There will be a thorough discussion of the current scientific knowledge regarding the Hereditary Ataxias and other neurodegenerative diseases, The focus of this meeting will be on neurogenetics and neurological rehabilitation trends and perspectives in the search for alternative therapies against these diseases.

In Cuba, research on Hereditary Ataxias has been very developed over the past decades and especially since the establishment of the Centre for Research and Rehabilitation of Hereditary Ataxias, the institution that organizes this Symposium.

Our achievements are the result of a comprehensive approach to this serious health problem, where the research actions, medical and social services work in cooperation.
That is why our country is an important location for such a Symposium and why we are now inviting you to participate in a magnificent stay filled with the professionalism, love, warmth and hospitality characteristic in Cuban people
.

 

Dr.C Luis Velázquez Pérez, PhD
Centre for the Research and Rehabilitation of Hereditary Ataxia (CIRAH ), Principal President of the Organizing Committee

 

Preliminary Program

Our Symposium is in organization process yet, this preliminary program that we show you it has been made with the lectures of many scientist that have confirmed the participation in the congress.

Dowmload Preliminary Program. PDF Version (50.2 Kb)

The deadline is June 30, 2008. You can send us your abstract then , it will be evaluated by the Scientific Comittee to be include in the Symposium Program

If you wish to know more about this event you can write to :


ataxia@...
frankluisv@...

 

 

Speakers

 

Name

Country

Dr. Georg Auburger

Alemania

Dr. Rüdiger Hilker

Alemania

Dr. Patrick MacLeod

Canadá

Dra. Lidia Ruiz

México

Dr. Oscar Próspero García

México

Antonio Bueno-Nava

México

Dr. Antoni Matilla Dueñas

México

María del Rocío G. Ramírez

México

Juan Fernandez Ruiz.

México

Dr. Angel D. Huerta

México

Dr. Alfonso Alfaro Rodríguez

México

Dr. Alberto Labra

México

Dr. Rigoberto González Piña

México

Dr. Alberto E Nuño Licona

México

Lic. Lourdes Galicia Polo

México

Dra. Carmen Sánchez

México

Dr. Reyes Haro

México

Dr. Joel Gottesfeld

USA

Dr. Henry Stokes

Guatemala

Dra. Analiza Pastore

UK

Dra. Paola Giunti

UK

Dr. Mitali Mukerji

India

Dra. Isabel Lastres

España

Dr. Antoni Matilla Dueñas

España

Dr. Barbara Scheiber

Austria

Dr. Georgios Loudianos

Italia

Dr. Peter Bauer

Japón

 

Dr. Jerome Honnorat

Francia

 

Dr.C Armando Senmanat

Cuba

 

Mitchel Valdés Sosa

Cuba

 

Lázaro Álvarez González

Cuba

 

Julio C García Rodríguez

Cuba

 

Dr. Jorge Aguiar Santiago

Cuba

 

Dr. Jorge L González

Cuba

 

Dr. Jorge Bergado

Cuba

 

Dra. Beatriz Marcheco

Cuba

 

Dr. Lázaro Alvarez

Cuba

 

René Delgado Hernández

Cuba

 

PhD. Luis Velázquez

Cuba

 

MSc. Dany Coello Almarales

Cuba

 

Lic. Roberto Rodríguez

Cuba

 

Lic. Julio C. Rodríguez

Cuba

 

Lic. Luis Almaguer Mederos

Cuba

 

Lic. Jose M Laffita Mesa

Cuba

 

Dr. Raúl Aguilera

Cuba

 

BSc. Dennis Almaguer

Cuba

 

Dra. Jacqueline Medrano

Cuba

 

BSc. Yanetza González

Cuba

 

Dra. Tania Cruz

Cuba

 

Lic. Nalia Canales Ochoa

Cuba

 

Dr. Humberto Jorge Cedeño

Cuba

 

 

General Information

If you wish to know more about our Symposium, you can download the following papers, wich are containin, useful information about how to get to the place of the Congress, means of transportation that you can use, the preliminary program of our Symposium and many other things.

Integral Paper

Bulletin

If you need further information about the accomodation, credit cards or the option you can have as a tourist in our country you can write to:

MSc. Lis Cuesta Peraza.
Cuban Travel Agency Paradiso Holguín, Cuba
http://www.paradiso.cu
Phone:                +53 24 468122        
Fax: +53 24 3 468177
E-mail:
paradisohlg@...

 

 

Main Topics

Our Congress will be able to approach different subjects such as (All the subjects are referring to Hereditary Ataxia (SCA):

• Molecular Biology of Neurodegenerative disorders.
• Clinical, Genetical and Neurophysiological Research.
• Therapeutical options.
• Electrophysiological biomarkers.
• Animal and cellular models
• Sleep disorders in Neurodegenerative diseases
• Prenatal and presymptomatic diagnosis
• Neuroplasticity, Neurorehabilitation and Restorative Neurology.

Our Centre has as a major objective to improve the life quality of patients who are suffering these diseases that's why our research lines are focused into finding therapeutical options and understanding causal mechanisms of this illness.

We have attained interesting results in some areas such as Neurophysiology, Molecular Biology and Rehabilitation, published in several important journals and magazines all over the world. Because of all these reasons we own a prestigious curriculum and consideration among patients and researchers.

One of the most important means to receive and give knowledge is the scientific discussion. That's why we are in the 3 rd Edition of the International Symposium on Hereditary Ataxia ready to give to mankind what is asking to us… at this moment “IMPROVEMENT OF LIFE QUALITY AND KNOWLEDGE” and maybe later “THE CURE” for this diseases.

 

 

 

The legacy of Marie Schlau: literature to help cure Friedreich's Ataxia

If you feel like reading an unputdownable novel while collaborating with a just and solidary cause, "The Legacy of Marie Schlau" is your book! 100% of all funds raised will be dedicated to medical research to find a cure for Friedreich's Ataxia, a neurodegenerative disease that affects mostly young people, shortening their life expectancy and confining them to a wheelchair.

The life of Marie Schlau, a German Jewish girl born in 1833 hides great unsolved mysteries: accidents, disappearances, enigmas, unknown diagnoses, disturbing murders, love, tenderness, greed, lies, death ... alternatively a different story unfolds every time and takes us closer to the present. Thus, there are two parallel stories unravelling, each in a different age and place, which surprisingly converge in a revelatory chapter.

Paperback and Kindle versions for "The legacy of Marie Schlau" available for sale at Amazon now!

https://www.amazon.com/Legacy-Marie-Schlau-collective-Friedreichs-ebook/dp/B01N28AFWZ

 

Research projects currently being financed by BabelFAmily

Currently, BabelFAmily is financing two promising research projects aimed at finding a cure for Friedreich's Ataxia. Whenever you make a donation to us or purchase a copy of "The legacy of Marie Schlau", this is where all funds raised will be devoted to:

1) Gene Therapy for Friedreich's Ataxia research project:

https://www.irbbarcelona.org/en/news/international-patient-advocates-partner-to-fund-spanish-gene-therapy-project-to-treat

The project is the result of an initiative of Spanish people affected by this rare disease who are grouped in GENEFA in collaboration with the Spanish Federation of Ataxias and the BabelFAmily. The Friedreich’s Ataxia Research Alliance (FARA), one of the main patients’ associations in the United States now joins the endeavour.

2) Frataxin delivery research project:

https://www.irbbarcelona.org/en/news/new-research-front-to-tackle-friedreichs-ataxia
The associations of patients and families Babel Family and the Asociación Granadina de la Ataxia de Friedreich (ASOGAF) channel 80,000 euros of their donations (50% from each organisation) into a new 18-month project at the Institute for Research in Biomedicine (IRB Barcelona). The project specifically aims to complete a step necessary in order to move towards a future frataxin replacement therapy for the brain, where the reduction of this protein causes the most damage in patients with Friedreich’s Ataxia.

The study is headed by Ernest Giralt, head of the Peptides and Proteins Lab, who has many years of experience and is a recognised expert in peptide chemistry and new systems of through which to delivery drugs to the brain, such as peptide shuttles—molecules that have the capacity to carry the drug across the barrier that surrounds and protects the brain. Since the lab started its relation with these patients’ associations in 2013*, it has been developing another two projects into Friedrich’s Ataxia.

 

 

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