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Latest news on Friedreich's Ataxia research
Updated results from clinical trials and research initiatives
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FRIDAY, OCTOBER 31ST
Beautiful Instrumental Rock Guitar Music
NEW CD OF BEAUTIFUL INSTRUMENTAL ROCK GUITAR MUSIC
For Immediate Release
Company: Ascending Realm Music
Contact: Brandon Campbell
October 2008 - Centennial, CO. I'm So Happy, I Can't Stop Crying by Sting resonates deeply with Brandon Campbell. After years of ups and downs Brandon has finally realized a beautiful debut instrumental rock guitar CD, Trilogies.
In 1999, Brandon was diagnosed with Cerebellar Ataxia, a disease attacking the nervous system. Brandon's then six year old dream of creating a CD of original music seemed farther away than ever. But even with all the hardship that Ataxia brought, Brandon maintained His musical goal.
“Each song on Trilogies touches my soul and it is my hope that they touch yours also.” Brandon Campbell
Now, at the age of 37, Brandon has found a way to share His music with the world. Though Trilogies is all instrumental, it has a lot to say. The Spiritual Trilogy explores the sentient and divine, the Elegant Trilogy the graceful and majestic, the Mystic Trilogy the esoteric and mysterious, and the Evolution Trilogy chronicles important advancements in our world.
15% of all proceeds from Trilogies will be donated to the National Ataxia Foundation (www.ataxia.org).
Trilogies is available at www.cdbaby.com, www.guitar9.com and www.amazon.com.
Please visit www.trilogiescd.com to learn more about the music.
Full Contact Information:
Ascending Realm Music
PO Box 2223
If you feel like reading an unputdownable novel while collaborating with a just and solidary cause, "The Legacy of Marie Schlau" is your book! 100% of all funds raised will be dedicated to medical research to find a cure for Friedreich's Ataxia, a neurodegenerative disease that affects mostly young people, shortening their life expectancy and confining them to a wheelchair.
The life of Marie Schlau, a German Jewish girl born in 1833 hides great unsolved mysteries: accidents, disappearances, enigmas, unknown diagnoses, disturbing murders, love, tenderness, greed, lies, death ... alternatively a different story unfolds every time and takes us closer to the present. Thus, there are two parallel stories unravelling, each in a different age and place, which surprisingly converge in a revelatory chapter.
Paperback and Kindle versions for "The legacy of Marie Schlau" available for sale at Amazon now!
Currently, BabelFAmily is financing two promising research projects aimed at finding a cure for Friedreich's Ataxia. Whenever you make a donation to us or purchase a copy of "The legacy of Marie Schlau", this is where all funds raised will be devoted to:
1) Gene Therapy for Friedreich's Ataxia research project:
The project is the result of an initiative of Spanish people affected by this rare disease who are grouped in GENEFA in collaboration with the Spanish Federation of Ataxias and the BabelFAmily. The Friedreich’s Ataxia Research Alliance (FARA), one of the main patients’ associations in the United States now joins the endeavour.
2) Frataxin delivery research project:
The associations of patients and families Babel Family and the Asociación Granadina de la Ataxia de Friedreich (ASOGAF) channel 80,000 euros of their donations (50% from each organisation) into a new 18-month project at the Institute for Research in Biomedicine (IRB Barcelona). The project specifically aims to complete a step necessary in order to move towards a future frataxin replacement therapy for the brain, where the reduction of this protein causes the most damage in patients with Friedreich’s Ataxia.
The study is headed by Ernest Giralt, head of the Peptides and Proteins Lab, who has many years of experience and is a recognised expert in peptide chemistry and new systems of through which to delivery drugs to the brain, such as peptide shuttles—molecules that have the capacity to carry the drug across the barrier that surrounds and protects the brain. Since the lab started its relation with these patients’ associations in 2013*, it has been developing another two projects into Friedrich’s Ataxia.