Home How you can help

How you can help

Here are a few suggestions:

Help find a cure for Friedreich’s ataxia

Raise funds for FA research and patient services.
--Organize your own local fund-raising effort (Here we might append or link some of the lists of fundraising suggestions found on FARA, MDA, NAF, Ride Ataxia III, FAPG websites etc...)

--Join BabelFAmily fundraising initiatives. Please contact us at: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

--Make an online donation to babelFAmily.


Help keep the BabelFAmily website fresh and interesting
--Submit your personal story and a photo to be published on our “Personal Stories” page
--Share your photos on our “Photos” page (be sure to label who/when/where)
--Share your videos about life with FA, new equipment you’ve found useful, etc. on our “Videos” page
--Visit our “Forum” and join the discussion that interests you

Help our translators keep the information flowing

If you write well in your own language and read another language fluently, join our small but growing number of volunteer translators.  We try as much as possible to only ask our volunteers to translate INTO their own maternal language, to ensure the clearest and most accurate translation possible.  We would like to have more than one translator for each language.  We especially need translators for Eastern European and Balkan languages and Arabic.  The work is done entirely at the pace each translator is able to keep.

Help us keep the information up-to-date
Send interesting articles from medical journals and online information services, the popular media, and newsletters from organizations which deal with ataxia

Help keep our forums going in various languages
In order to have a forum in each language, we will need a moderator for each language.  Perhaps you can’t translate, but you could moderate the forum for your native language.  Moderators make sure the discussion stays civil in tone, follows “rules of engagement”, and stays on topic.  They may propose new topics from time to time to keep communication flowing.

Help us improve
Let us know about errors you may find on the website so that we can make corrections.

Join BabelFAmily
Because we are an independent organization, we charge no membership dues.  But we are strengthened by your involvement and participation. To join us, send an e-mail to This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Help us reach others
--Encourage your friends to visit our website and to subscribe to BabelFAmily.
--Put a link to this website on your ataxia-related website, or send out the link through your mailing list or newsletter.
--Provide us with contact information for your organization to include on our “Associations” page (send an e-mail to: This e-mail address is being protected from spambots. You need JavaScript enabled to view it )

 

BabelTravels

- Raise funds for biomedical research for Friedreich's ataxia

- Get in touch with other people in the ataxia community

- Travel to other countries

How can you do all three at the same time? BABELTRAVELS is the answer. Click here to find out more! 

 

 

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Download "The Castle of Albanza"

Download 'The Castle of Albanza', María Blasco's latest novel, for just 10 USD, by clicking on the image above. You will be redirected to the file after the payment process. All funds raised will be destined to Friedreich's Ataxia research. For any questions, please contact: coordination@babelfamily.org

Research projects funded by BabelFAmily

These are the research projects we are currently funding or co-funding:

Professor Pierre Rustin's research project (Robert Debré Hospital, Paris) (2010-2012). More information

Professor Michele Lufino's research project (Oxford University, 2011-2012). More information