Ana Ilic

Translation for BabelFAmily by Caroline Williamson

When: Tuesday 31 January 2012, 6pm – 7.30pm
Where: King Milan, 48, Belgrade

Description: Ana Ilic will come and speak publicly for the first time about her first book . Verses from the book will be read aloud by actress and writer, Ivana Mihic and television host and writer, Jelena Bacic Alimpii?. Svetlana Polak, poet and writer, will also speak about the book.
Promotion organized by writer Ivana Kuzmanovic.
Music program: Zoran Stojic Stojke, acoustic guitar.
Cocktail party hosted by Laguna Publishing House

Guests will also have the opportunity to buy the book at the promotion, as well as to design their own customized ‘heart’, with all proceeds from purchases going to fund treatment for the author, Anna Ilic.

Dr Julie Greenfield, Research Manager at Ataxia UKNews kindly supplied by Goran Ilic

3 January 2012 - Researchers at the San Luigi Hospital in Torino, Italy, have been given the go-ahead to run a Phase I clinical trial of a new drug designed specifically to treat Friedreich’s ataxia. Regulatory approval was granted for this trial in which up to 20 patients with the condition will be tested with the drug, known as RG2833.

Scientists will aim to find out whether the drug is safe, and to learn more about its effects on the body. In particular, they will measure any changes in levels of frataxin, a key protein that is reduced in people with Friedreich’s ataxia.

THE ENIGMATIC NOVEL, SET BETWEEN THE OLD WORLD AND THE NEW, WRITTEN BY EXTRAORDINARY PEOPLE SUFFERING FROM FRIEDREICH’S ATAXIA

Writers with this disease unite their talents and energies to compose a single, collaborative story.

Press release - For immediate release

May 9, 2011 – Writers suffering from a terrible disease are coming together to author a special, collaborative novel that will be sold in bookstores to collect funds for scientific research. This original literary project with a multiplicity of voices will be published to fight Friedreich’s Ataxia, a neurodegenerative disease that relentlessly affects many people worldwide and still has no cure. It is, however, a “niche” disease in which pharmaceutical companies do not invest. Resources to fund research on this disease are therefore collected from people who are either directly or indirectly affected by it and who work on a voluntary basis. This ambitious initiative was started by María Blasco, a 38 year old Spanish author suffering from Friedreich’s Ataxia since childhood. Some of the other writers from around the world who have joined the project are Fatima D’Oliveira (Portugal), Marguerite Black (South Africa), Rebecca Stant (Australia), Jamie Leigh Hansen (United States), Alessia Mainardi (Italy), Maria Pino Brumberg (Spain), Nicola Batty (UK), Claudia Parada (Mexico), just to name a few.